Workshop I: Engaging young participants: PPIE challenges and solutions in Paediatric Biobanking

The workshop will explore how biobanks, especially those with paediatric collections, engage children and parents in decisions about biosamples and data collections, focusing on the complex ethical and practical challenges, unique to working with young participants. Key issues include consent and assent processes, recontact at the age of majority, broad-consent limitations, and the return of secondary findings. 

The workshop will explore and address different ethical and practical challenges through a series of short presentations by biobank specialists, ELSI experts, and patient representatives that will help identify key challenges and areas where clearer recommendations are needed. 

Target audience: This workshop is intended for biobank staff, biobank managers, biobank directors, researchers, ELSI experts, clinicians, and public engagement specialists who are looking to engage and involve patients, public, and other stakeholders in their research and biobanking activities.

The workshop will include short presentations on key challenges and best practices followed by break-out groups working on the key areas identified for recommendations. 

Maximum number of participants: no limit (61 registrants so far)