Friday, 22 May 2026 | 12:00 - 13:30
11B: Paediatric biobanking
- Ethics, regulation and digital innovation: Navigating the future of biobanking
This session explores the unique challenges of paediatric biobanking, including ethical considerations, consent complexities and age-specific biological factors. Experts will share best practices for safeguarding young donors while ensuring sample quality. Attendees will learn how paediatric biobanks drive research in childhood diseases, developmental biology and personalised medicine to improve future health outcomes.
Speakers included in this session:
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Roland Jahns – Novel strategy in broad consent-based paediatric biobanking: Re-information instead of re-consent when minors attain majority
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Johanna Sandgren – The Swedish Childhood Tumor Biobank – A national omics and tissue research resource for pediatric cancers
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Fuji Nagami – Communication and ethical challenges in pediatric cohort-based biobanking: Lessons from the Birth and Three-Generation Cohort in Japan
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Eszter Tuboly – VIVO Biobank – Supporting translational research in paediatric cancers linked to innovative clinical trials
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Gesine Richter – Broad consent in paediatric biobanking – A review of current practise in 10 European countries
This session will be chaired by Prof. Dr. Roland Jahns and Dr. Vita Rovite.
6 speakers
Head of Biobank
Latvian Biomedical Research and Study Centre
Director centralised Biobank of the Medical Faculty Biobank
Interdisciplinary Bank for Biological Materials and Data
Karolinska Institute
Tohoku University
VIVO Biobank UK / Hungarian Pediatric Oncology Network
University Of Kiel