6B: Secure, fair and smart: Best practices for biobank data integration

This session uncovers strategies to protect donor privacy while enabling cross-border data exchange through robust governance, clear agreements and legal compliance. Experts will address GDPR, data residency and practical models for Data Transfer and Processing Agreements, highlighting how federated biobanking networks connect with healthcare data ecosystems to accelerate discovery and innovation.

Speakers included in this session:

• Michaela Th. Mayrhofer – Negotiating trust

• Vera Frankova – Building a national denomic data repository: Ethics and governance by design

• Philipp Ortner – A cryptographic framework for secure biobank data collaboration

• Joanna Ćwik & Kacper Bednarek – From local management to federated networks: Resource optimization and ETL automation using “a-small-fire”, BBMRI-ERIC Federated Platform and eBiobank

• Bella Anna Binoy – From data discovery to federated analysis: Supporting the research journey

This session will be chaired by Prof. Urban Bren and Błażej Marciniak, M.Eng.