RENALOO

Renaloo is a French patient association dedicated to chronic kidney disease.

We strongly belive that the needs of kidney patients could provide a strong case to explore issues such as 

- Co-design the renal use cases, particularly for dialysis, post-transplant follow-up, and palliative care phases;
- Contribute to real-life validation with patients and caregivers;
- Provide expertise in acceptability, ethics, communication, and patient empowerment;
- Disseminate the results through its French and European networks (authorities, alliances, platforms, etc.).

SOME KEYWORDS:

• Patient training and empowerment

• Socio-professional surveys & studies

• Qualitative data collection (focus groups, workshops)

• Patient and caregiver acceptability

• Ethics & governance

• Real-world data's

• Digital health / eHealth

• Personalised medicine

• Accessible communication / plain language

• Dissemination & outreach (FR & EU networks)

• Advocacy & institutional relations / regulation