Empowering Patients and Families in Pediatrics Care and Research: Enhancing Patient Experience and Engagement

At Hospital Sant Joan de Déu (HSJD), patients and their families have a central position. To support this commitment, we have two dedicated departments:

- Department of Patient Engagement in Research Area (FSJD works in straight collaboration with the Clinical Trials Office (FSJD) and the Innovation and Research Department of Barcelona Children’s Hospital Sant Joan de Déu (HSJD) fostering activities to provide support, education and information to patients and families regarding their participation in clinical research and innovation projects. The main goal is to ensure the patient centricity in all the projects while empowering young patients and careers as advocates in research and innovation. Research in this field is a key activity of the Area, providing in the different projects the measurement of the impact related to the citizens/patients/parents participations. Awareness activities and dissemination about the importance of involving young citizens and families in research is a cross-cutting activity of the Department and also the design of training resources.

- Patient Experience Department at HSJD is a multidisciplinary team dedicated to promoting human-centered, compassionate care. It has worked with healthcare professionals, patients, and families to enhance the patient experience before, during, and after medical care. Its strategy is based on participation through co-creation, patient support initiatives like the Friendly Hospital program, and training to empower patients and families in decision-making.